Quick Update

I wish I had time to write because Evan and Amelia are doing amazing things! Amelia rolls over now and all she wants to do is jump, jump, jump! They smile a lot, especially Evan. He is always attempting to grab things- soon, very soon! The looks they give are hilarious. I wish I could upload pictures- also soon!

Evan is now 8 lbs. He is eating all the time, which he could never do quite well, espicially before the surgery. Mr. Chubbs. He is soooo cute. Take my word for it until next week, when I get my computer back! Here we come Athens on Saturday. John drove through last night and said it is quite hoppin' there with all the UGA activity.

Evan is going home!!!!!

Just a quick update from daddy. Evan is going home in 3 hours. They removed the last of the invasive wires/tubes from his body an hour ago and they want to watch him for 4 hours to make sure there were no complications. He is doing wonderful. He is happy and alert and is eating well.

Goodbye Internet

It is a sad day. My internet is gone and I cannot do any updates for awhile. I am updating from Evan's hospital room on the nurses computer somewhat illegally. I might have my sister update. The movers are coming this morning and John will be leaving in a week. Good by internet and 24" HD monitor whom I love so much.

Anyway, back to Evan. He is doing wonderful. Got out of the ICU yesterday and is now in one of the new suites at Children's. Flat screen T.V. and private bath/shower in here! We have conversations about the parties we are going to throw down. He might be going home tomorrow or the next day. It all depends on if he eats enough. Sometimes he does, sometimes he doesn't. I keep telling him to eat so we can blow this joint, but he doesn't listen all of the time.

I am getting sick of him being exhausted and the doctors/nurses/aides not letting him sleep. He has no energy to eat because they won't leave him alone, yet they expect him to eat. I can't stand this place. I wake up in the middle of the night and someone is feeding my baby even though I said I wanted to do it. Occupational therapists taught me how to feed him correctly and the nurses aren't doing it right. So of course he doesn't eat enough if they aren't correcting his feeding pattern. I am just frustrated.

Hopefully I can update on this computer when he gets discharged, or I will have my sister write something, she will probably enjoy it!

Take care, next up Athens!!

Thursday Update

Respirator is out! Thank goodness he is such a laid back baby. Just chillin' with the nurses like he is at the spa.

Wednesday Update

Evan is doing really well today. If he clears a little more fluid from his lungs and around his heart today, he will be off the respirator this afternoon. He is busy sucking away at his pacifier and looking around. He got upset when he saw me today. It was like he was saying "mom help me, what the hell is going on?" Then I got upset. But he calmed down. It will be hard not to pick him up for a few days. But by the end of the week he will be out of the ICU and they will teach us how to pick him up and slowly start feeding him. They say he will be such a good eater now he will drown himself with milk if we don't start out slow! I can't wait for my fat baby.

Life in the hospital is interesting. I'm not a people lover, so I'm not too happy about getting run down by people, especially in the cafeteria. I mean, I know you're hungry people, but pushing to get to hospital cafeteria food? Issues, people! And one bathroom for all of the guests on the third floor? You've got to be kidding me. I just hold my breath and dive in like Elaine on Seinfeld on the airplane. And then there is the one family in the family waiting room that sits at the one table all day and doesn't let anyone else eat there. I've had it and I'm going to give them attitude today. It's been too long since I've given attitude and I'm about to burst!

Evan Update

OK, so I found internet and have an update! We had a pager that they used to update us during the surgery. Then we finally got to see him around 1 or so. We were afraid to see him hooked up to all the wires and tubes, but it wasn't as bad as I thought It would be. He really looks good. He is as of right now holding his own heartbeat and all the other vitals look great. He will be sedated through the night and will probably be slowly woken up tomorrow. So it is a good update. I'm sure I will post another update tomorrow.

The technical jargon being thrown around here is hard to understand. A little frightening. Then I remembered from working for the government that everything sounds really important and contains a lot of acronyms. I have other stories to tell about my sleep deprived delirium. Later, I guess, it's time for cafeteria food! Yum, yum.

Easter Pictures

Even though I couldn't get to a portrait studio, this mom had to have a spring/Easter pic of her babies. I need a sense of normalcy around here. Isn't dressing them up half the fun of having them? I don't care if there is a tube coming out of my little man's nose. It is what it is.

Taking pics of twins is such a challenge. There is always one not cooperating!

The big day

Tuesday is the day. I'm looking at it as the day Evan starts to get better. Walter Reed Army Medical Center and Children's National Medical Center have been amazing to us. Children's just called and offered us a nearby 2 bedroom apartment to stay in next week. For $10! We will take turns resting there and my mom and Amelia will stay there. Hopefully they will not have to dodge bullets to come and visit. Dr. Jonas is considered to be the best in the world for this surgery. He actually wrote the textbook on it, no lie! If there is internet, I will update- WRAMC did not have any!

This Sucks

The day after we went fishing, I felt that there was really something wrong with Evan. He wasn't eating. We went to the doctor's at Walter Reed Army Medical Center and, well, we are still there. Evan was admitted for his heart failure and we await the decision of when to operate. We are supposed to be moving in 2 weeks, but I may not be. Surgery may be in a week and a half. If he gets stronger after the surgery, it was meant to be. I kind of want to get it over with here because one of the best pediatric cardiovascular surgeons in the country would be operating on him and everything is in place for it to happen if needed.

I will update soon. Amelia is here for comic relief. The faces and sounds she makes are enough to keep us laughing all day.

Bad Babies!