Well, last week was just sucky. But now that I look back on it, it was just one thing that was really sucky, but it destroyed any good mood that may have crept into my psyche.
Last week was evaluation week for Evan. Three of them done by his OT, his PT, and the Infant Toddler Program case managers, which is a developmental evaluation. Can Evan do everything a toddler with two perfect arms can do at 3 years? Yes! Fine and Gross motor skills. He is awesome!!!
But as for the developmental aspect, well, he completed every skill test with flying colors. EXCEPT: he was supposed to stack blocks of the same color together. He stacked the yellow, then the red, then just started building a tower with the rest of the blocks, completely ignoring the lady. I giggled. The lady did not. She told me this was troublesome and that she would have to report it to the state. Everyone I tell this story to literally LOLs. But I was steaming!! Don't worry, I have written a letter... Apparently, according to his PT, the test is mandatory and they have to report everything and cannot take your word that they do something at home. She told me that they test until they can't do something, even if the test skill is for 48 months. She also said that the person doing the test should never have used that language with me. Don't worry, I have written a letter...
Also, recent events at school (aggressive behavioral issues don't mix with a kid with physical issues) have made me realize that I don't want to accept any help from the state regarding pre-school for kids with delays. We are parting ways.
The Good News:
1) Evan's heart is great! There is still a residual VSD of 2mm, which should close over the next few years. We don't go back to the cardiologist for two years.
2) Evan is 25lbs and Amelia is 22lbs! Still less than 3 percentile, but they are growing, and quite a bit lately. The doc said they should have a growth spurt soon. We'll see!
3) The kids are both talking away like mini-adults. Amelia is now using "phrases with 'tude", such as: "Yeah, Momma, that's right", "whatever you want", and "I'm pretty sure __" ("I'm pretty sure I'm right", "I'm pretty sure Evan needs to keep his hands to himself", etc.)
Here is a Flip video I took last night. It's supposed to be HD, but it doesn't look that great to me. I haven't been able to upload any because of our crappy internet, but now we have unlimited!
1 comment:
Toddlers doing somersaults = hilarious!
By the way, we have our transitional evaluations coming up and I'm very nervous about them. And I'm not excited about the facilities of our special ed school should/when we get into the programs. But I don't know that a)we could afford a private program, and b) find one that can deal with our feeding issues. Can't win, and it should be so easy to get exactly what we want and need for our kids here in the states.
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