Thursday, July 5, 2012

Back from Vacay

We are back from vacation! We went stayed in San Diego and went to Legoland while there. We did a girls night at the zoo and walked about 5 miles uphill to see sleeping animals hidden in the back of their exhibits. Evan was sick with a temp up to and over 104 for three days. We almost were at the Navy Hospital there, but the fever broke and it was on to a last minute visit to Disneyland! The California Adventure side was completely re-done and the new Cars Land opened inside of it a couple weeks ago. The park is much nicer, I was impressed. Enjoy the pictures!


Legoland houses


Star Wars lightsabers from Disneyland
Navy Lodge on Corodand Island

Lego cars



Lego Star Wars exhibit

Lego Han


loved seeing the Navy at work from our patio

USS Midway fighter jet


The Midway, Amelia's favorite thing to do in San Diego

inside a huge helicopter on the deck of the Midway

first time bowling


San Diego Zoo flamingos. We sat there for 15 mins. She loves them because they are pink!

New Cars Land at Disneyland California Adventure

The monorail, still Evan's favorite

Ingrid's first Dumbo ride

Merida from Brave

first It's a Small World ride

Royal Coronation, first time Amelia sees Sleeping Beauty

Lego Store at Downtown Disney

Amelia was so good at Lego games on the PC, people loved watching her

Wednesday, June 13, 2012

Ingrid Update

At 4 months she was 11 lbs, 10 oz (3-5th percentile) and 24.5 inches (50th percentile), meaning she is long and skinny (say what?!). She is considered a "slow grower", but I'm not worried. She eats a lot! For awhile she has been acting like she wants to eat and the doc said to start giving her rice now if she'll take it. Of course she did and loved it, so now my life has gotten crazy. It is chaos here trying to take care of the other two while having to feed her on top of it all, especially with the therapy and school schedule. I mean, of course that is what the next step would be, I just wasn't prepared at all. I am finding a balance this week. Picture feeding a baby regular style, then....diaper change, getting kids up, potty, breakfast, diaper change, dressing kids, etc and out the door by 8:15am, wait- now you have to make rice cereal, shove it in a baby's face and clean her in addition. Diaper change, get her in her seat, get them in the car in their seats. All in an hour or so.

Ingrid is extremely active for 4 months. When I hold her she bucks like a cowgirl, she jumps in her jumperoo, log rolls across the living room, is commando scooting a little, and always has to face the world and watch everything. I don't know why I bought another baby wrap. How stupid can I be to waste money on a second one. I always wanted one because I would see these women out with their babies snuggled into them in the Moby wrap and think how nice would that be. Well, they don't work with a baby who has to look forward at everything. Maybe for when she's asleep? She doesn't do that when we are out. Too much to see. Amelia was like this, too. Yikes!

Here are the most recent 4 month photos/video. I see so many people in her face from different angles.

A Harrop baby

A Jass baby







Can I come play?

Tuesday, May 22, 2012

Medical stuff with my Superman




This is Evan's new splint that is like 9 months old already. I wanted to show it off because the finger placement pad is awesome and maybe it could help another family out.  I have met quite a few moms now of babies and kids with a missing radius like Evan. Everyone seems to be finding their way out there and doing amazing work. Yes, work, because it is just that, trying to find the right docs, therapists, support, etc. Still, I should be trying harder just in case someone with a little one is searching for answers. I forget how old Evan actually is. Such a big boy, now.

Soon we will be heading up to Lucille Packard Children's Hospital at Stanford again. This time we are have an orthodic created to protect his shoulder bone. He fell off of a ladder at the playground and said his shoulder hurt, so I guess it's time to get something made to protect his pointy shoulder. I'm just waiting on the referral. If that doesn't work out, there is a Shriners in Sacramento, but goodness that is a far drive, possibly an overnighter. If I'm told that that is where we need to go, then you know I'll do it. So more on that later...

We went to the urologist today and his kidney ultrasound looks great. We are looking for his one kidney to grow a bit in the next 6 months, so we'll keep our fingers crossed.

Also, his PT is quitting and we hope to get a new one ASAP. This is the reason I can't wait to get to our next place. Any of the big sea tour locations should be able to handle the care Evan needs. Should. But we know by now that one place will have a wait for therapy (until I go all crazy on them), one place won't have a hand surgeon, and the other will be in WA state, lol.