The Rehab Blues

Well, I wanted to take Evan to rehab,
They said it don't work that way,
Stay at home and we'll give you a call,
and I said, well that ain't Okay,

I'm singing the blues...
Yeah, I'm singing the rehab blues...

Said that they're working on it,
but I think they're taking a snooze,

Yeah, I'm singing the rehab blues...

How about this one, sung to the tune from "They try to make me go to rehab", by Amy Winehouse:

Try to take Evan to rehab,
They said No, No, No.
Even though it's been over 6 weeks,
They said No, No, No.
Well, I don't think that's kind,
But they just say he's fine,
Try to take Evan to rehab,
They said No, No, No.

I have had such a nightmare of a time time to get Evan's PT and OT started, I really don't even want to talk about it. So I decided to sing about it. Thanks for listening. Or imagining listening.

The short story is that Evan is still not getting the therapy he needs because there is a transition period to overcome. The program is a "0-3" program, which is better in the long run, but takes some paperwork to get it all started. And then a nurse has to come to our house to evaluate whether or not he needs separate PT and OT therapist. We've known since before he was born that he would and that is what his physicians referrals call for, but that is the way the program works. The money comes from the state, so what else can we expect? Once it gets going, it will be the best therapy. We hope.

Even our case manager says there is no quicker way. If this is the way it works in this area, we should have never moved here. Evan is in the Exceptional Family Members Program and can only move to places with adequate care. I personally don't think this is adequate care. How many other special needs military kids aren't getting continuous care because that's not the way the system works? I think it is time for a change and I have decided to do something about it. I just have to get my life organized a little first.

Anyway, in better news, Evan is attending a Limb Differences Clinic at Seattle Childrens Hospital in May. A Limb Difference Phsyiatrist (fizz-eye-uh-trist) and Occupational Therapist are going to get a therapy plan together that hopefully his therapists here can follow. My main concern and reason for going is that they will be able to talk to me about his shoulder. I don't believe any therapy for stretching his neck can be successful without addressing his shoulder. His former therapists have been concerned about it, but I have not been able to get a physician or specialist to talk to me about it. Therapists need to know what's going on so they can help! There may be some talk of creating a better shoulder plate for him down the road. We'll see. I can't wait!