Well, we made the trip to Minneapolis and back from Kenosha with Evan (a 12 hour round trip via mini-van). It turns out Evan's arm/hand orthopedic surgeries cannot be done at Shriners Hospitals because he had heart surgery and there is no emergency dept, icu, or heart specialists on hand if something were to happen. They only do orthopedic surgeries and treat burn patients with no prior complications. I'm not sure why they would not tell me this before making me drive all the way there, but everything happens for a reason with us. We got to meet the top surgeon in the country for arms with a missing radius, Dr. Ann Van Heest. She told us her opinion of what corrective steps she would take. If she would do the surgery, however, we would have to fight with our insurance to pay for the surgeries at another hospital in Minneapolis. I think if I try hard I could win this battle. But, she told us names of surgeons she recommended in Boston and Seattle, so we are thinking of going that route. Minneapolis is just so out there. The thing is, Boston and Seattle are in different insurance coverage areas, so there is going to be a battle with them at some point. As soon as I get to CT, I'm going to take Evan to see the surgeon in Boston and talk with him on his opinion and if he can place a call to the surgeon in Seattle. It's a mess! I try not to have the "why me?" or "why him?" attitude, it's just so hard to stay positive all the time when one thing after another doesn't work out.
Anyway, the first surgery is called "wrist centralization" where the wrist is moved over and attached to the remaining bone in his arm, the ulna. First we have to put splints on Evan every night to aggressively stretch out his muscles and tendons that are supposed to attach to a radius bone. Having this surgery will keep his hand from pulling inward so much. This surgery should be done by 12 months, so this is part of the reason I'm freaking out about where to do it. If I wait until Seattle he might be a little older and John will be on a submarine! If we do it in Boston, then we have to move before his cast comes off and the pin comes out. Do I fly 6 hours with twins back out to Boston for this? I can't imagine a surgeon would want another surgeon completing his work. Do I stay in New England for awhile? Aaahhh!!
So that is my update. Coming to you from our new broadband "air card" in our laptop while riding in the homamma mobile.
Anyway, the first surgery is called "wrist centralization" where the wrist is moved over and attached to the remaining bone in his arm, the ulna. First we have to put splints on Evan every night to aggressively stretch out his muscles and tendons that are supposed to attach to a radius bone. Having this surgery will keep his hand from pulling inward so much. This surgery should be done by 12 months, so this is part of the reason I'm freaking out about where to do it. If I wait until Seattle he might be a little older and John will be on a submarine! If we do it in Boston, then we have to move before his cast comes off and the pin comes out. Do I fly 6 hours with twins back out to Boston for this? I can't imagine a surgeon would want another surgeon completing his work. Do I stay in New England for awhile? Aaahhh!!
So that is my update. Coming to you from our new broadband "air card" in our laptop while riding in the homamma mobile.
2 comments:
Don't you mean 'Hotmamma mobile' not Homamma mobile? Just wondering.
No, I mean Homamma mobile. Fo sho.
Post a Comment